This website has been developed and funded by Amgen. For UK & EU patients and carers affected by TED and/or autoimmune thyroid disease. Educational information only - not a substitute for professional medical care.

Resources

This section is designed to help you find information that may be useful as you navigate your TED diagnosis and management.

Information on this page is not intended to be used as a substitute for medical care and should not be relied upon for the diagnosis or treatment of TED or Graves’ disease. If you have questions or concerns regarding your health, please contact your doctor. 

Understanding TED

Understanding TED

An overview of Thyroid Eye Disease — what it is, who’s at risk, and the early signs to look out for.

Caregiver’s Guide

Caregiver’s Guide

Helpful tips and advice for supporting a loved one with Thyroid Eye Disease.

symptom-checklist

Symptom Checklist

Track your symptoms and get guidance for making the most of your doctor appointments.

Self-Advocacy Roadmap

Self-Advocacy Roadmap

Tools and tips to help you take charge, ask questions, and get the support you need.

Fast Facts Card

Fast Facts Card

A quick guide to TED symptoms, risk factors, and what makes it different from Graves' disease.

Track Your TED

Track Your TED

Log symptoms, changes, and how TED affects your daily life.

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Patient Organisations

Listening to how others manage life with Thyroid Eye Disease (TED) can offer valuable insights for improving your own care or simply providing comfort. You do not have to cope alone. 

Below are some organisations and communities focused on supporting individuals with TED and Graves' disease. 

  • The International Agency For The Prevention Of Blindness (IAPB)  
    iapb

    IAPB is the overarching alliance for the global eye health sector, with more than 250 organisations in over 100 countries, working together for a world where everyone has universal access to eye care.

  • Global Healthy Living Foundation
    The Global Healthy Living Foundation

    The Global Healthy Living Foundation is a non-profit organisation whose mission is to improve the quality of life for people living with chronic illnesses by advocating for improved access to health care and amplifying education and awareness efforts within its social media framework.

  • Thyroid Federation International (TFI)
    Thyroid Federation International (TFI)

    Thyroid Federation International (TFI) is a global, non-profit network of patient organisations with more than 30 member organisations from all continents – both patient-led and patient-oriented.